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Sideshow Meg

what is everyone doing?

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15 hours ago, momac said:

Luna, I was thinking about you and your father.  I sometimes when I feel rough or down I find myself heading back to the Reiki discipline, I keep the pages with the different hand positions on my little table beside my chair, whether they work or just distract me I find I feel a wee bit better after.  I wondered if your father ever gave them a try when he was feeling ill.

 

Have you given up on Facebook? I often think I'd like to but I would miss the comments from people I feel close to and the larger reason is knowing how my Yellowknife family are, they don't phone or e-Mail very often so I find Messenger helpful and often Neil posts snippets about what's happening at the school.

 

Neither of us thought of Reiki, Momac so that's a good suggestion that I will put to him.  He has a doctor's appointment tomorrow (Monday) so we'll see what the doctor has to say.

 

No, I haven't given up on Facebook, I tried to change my name back to Luna Moonchild and got banned again.  I only just managed to get back on so I'll have to put up with my real name and I'm keeping my head down.

Edited by lunababymoonchild

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As for what I've been doing?  Well my father has been more ill than not this past week and I don't do too well in the heat either so we've been confined to quarters and out of the sun as much as possible with me getting caught up in the Roland Garros Tournament in Paris.  My father is heartily sick of tennis now and Wimbledon isn't even on the horizon! 

 

I did manage to water my pots and the rain took it's own sweet time getting to us, but it did eventually rain.  The temperature hasn't gone down though but it's dull so no searing sun to battle.  I have also managed a little crochet from time to time and am still reading Bleak House

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I too have been following the French Open - I have two or three players I like to watch, Goffin, Del Potro and Cilic, our young Canadian Shapovalov only made it to round 3 I believe.  I get a bit tired of the best 3 out of 5.

 

I hope your father gets feeling better soon, once into the 80's some days can be a bit more iffy.  Just have to take it easy on the iffy days.

 

I've been reading 'summer' books by Mary Alice Monroe, she writes books about summer cottages and beach activities, all fiction but with pleasant plots and satisfying endings.

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Gardening on our minds - we asked our neighbour, who does our lawn, for a price on taking out three evergreen shrubs which had outgrown the narrow border garden which runs along the north side of the house and no sooner had we said o.k. to his price than they were quickly removed.  Dave went and bought five more Hostas to go with the two already there and now there is a nice Hosta garden instead of the evergreen jungle.  I remember when the grandkids were small and there was lots of snow on the ground they were playing a game which resulted in one of them being  pushed into the middle of one of the young shrubs and almost flattening it - I had to get a rope to pull the branches back in together again and it has survived all these years.  Lots of memories and now two of those grandkids have just graduated from university.☺️

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Nice memories to have, Momac. Luckily memories like that don't need the physical reminder of the living shrub to recall them.

 

I have discovered that the massive leaves from the rhubarb can be used as a mulch around my veg, to stop the water evaporating in the hot, dry, windy weather we are currently experiencing.  This is a timely discovery, as the water company will be fitting a water meter in a fortnight, so we will have to be a bit careful how often. the hose is used

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My father is a little under the weather today - thank goodness it's cooler and the sun isn't blazing down today - so it's a day in the house for us.  Went for a walk, weeded a plant, cleaned the washing machine and scanned in the rest of my Miami photos.  Not to mention put away some laundry and hoover my room.  I haven't been idle.  Bleak House is proving to be fascinating and I can't wait to find out what happens next.

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Sorry your father is not too well Luna, perhaps with a bit cooler weather he'll feek better if there is a cooler spell in the forecast.  Sounds like you got a lot done anyway but not as much fun as going out.  Saw an item on Facebook referring to Forest Bathing.  Didn't read the article but thought about you when I saw it.

 

That's a good idea to use the big rhubard leaves for mulch Meg,  they should do the job very well.  You are fortunate to have managed this long without having your water metered.  Our water useage is on our monthly hydro bill although I haven't really checked how much it costs as Dave usually does the bills.  He doesn't seem to worry about it so maybe it isn't too onerous.

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My father is feeling better today, Momac, thank you, and we now have dull, overcast and rain (which we've been desperate for for weeks), with much reduced temperature.

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There are high winds forecast for tonight and tomorrow. It probably won't reach us, although it is already windier than it has been for several days, but I have been round the garden wrapping up those clematis that are on the point of flowering and are in the firing line of the prevailing winds. Two of them have already had a few exposed shoots and buds shrivelled in what wind we have had, and they were badly effected by  strong winds this time last year.

I would like them to be able to put on a bit of a show this time.

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Unhappy times at our house - Sheila, our daughter, had a seizure at work yesterday, fell and gashed her head and chin.  We were at the hospital until about 10.30 last night when it was alright to bring her home.  She hasn't had a seizure in 20 years and we think the shock of having to euthanize her 18 year old Westie may have brought it on.  He was a really sick little dog, blind and deaf and trouble walking although he still managed to eat a bit of breakfast until the last day he wasn't interested and Sheila knew it was time for him to go.

 

They ran tests on Sheila and everything was normal except her Dilantin level is low so the examining doctor phoned this morning for her to increase the number of pills she takes at night.  She has slept for about seven hours today, she was just wiped out.  Her driving licence is revoked and probably will take effect for maybe up to a year which will be an annoyance for her but we'll manage to get her where she needs to be and there are always taxis.  Always something to deal with - she'll get the stitches out in about a week.

 

Sorry for the not so cheery post but she will get better each day.

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Sorry about your daughter, Momac. We always worry about our children, however old they may be, don't we? Let's hope it's another 30 years plus before there's another. 

The loss of her driving licence is a blow, but best not to risk the possibility of having a seizure while driving. Hopefully she will remain seizure-clear for the requisite time, and eventually be back at the wheel.

Mr meg hasn't had a seizure for four or five years but, as he has nocturnal epilepsy, and only has seizures when asleep (at about 4am) he is still allowed to drive. His licence only runs for three years at a time, and then he has to fill in an application form, with a declaration that he has had not had a waking one, which will run another three years. Of course, it would be revoked immediately if he did have a waking seizure within the three years.

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Thanks Meg and Luna, Sheila is up but looking what my Granny would call peelywally.  She has a black eye and the stitching at her hairline is quite prominent.  She slept all day yesterday but has trouble feeling settled today, hopefully tomorrow will be better.

 

That sleep epilepsy is the way Sheila's started when she was 16.  I woke up hearing this strange groaning sound and when I went in to her bedroom I couldn't rouse her. She came to in the ambulance.  It didn't develop into a large seizure until the one she had as an adult when they tried to switch her medication, that was 20 years ago and did not have another one until 2 days ago.  Hoping for better days ahead.

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We had some unsettling news yesterday.

Two of our grandchildren have some form of genetic abnormality - they both have disabilities which in some ways are similar, but in others seem very different. D was given a diagnosis for a specific disorder as a small baby, over 16 years ago. R had tests done a couple if years ago, but there was no diagnosis. At that time she had an inner cheek swab taken to get her DNA.

My daughter-in-law received a phone call yesterday giving her the results of whatever research has been done on R's DNA.

 

The results are worrying, in that she may now have a condition in which the prognosis is pretty poor . There will have to be a load more tests, which may or may not result in a firm diagnosis. The geneticists also want to do the same series of tests on D, possibly resulting in the overturn of his original diagnosis. I can't see him taking this well - especially that he is at the age when he will leave the care of paediatric specialists and get a whole new set of doctors for each of hs various problems.

One of his problems is that he is autistic, or at least, he exhibits behaviours generally associated with autism. He does nit cope well with change!

 

In one way, nothing has changed. They both still have what they have always had. It's just the prospect of possibly years of tests and then of finding out just how bad it might be for their future development that is disturbing.

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Meg, It must be a worry to all of you but hopefully the prognosis will be more positive than you might fear, I hope so.  

 

We had  a wonderful visit from Neil and wife, they were attending a family wedding and kept it a secret to surprise us.  It really cheered us all up happening just after Sheila's mishap.  She's feeling better but is a bit dizzy, she hopes to be well enough to go back to work tomorrow.  She has quite a shiner in her left eye but the bruising should fade quickly we hope.  There's nothing like family to warm the heart.:)

Edited by momac

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Sorry Meg to hear of the test results of your grandchildren.

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Thank you all for  your concern. 

Really, nothing has changed, just that we know a little more, but not enough yet to make us any the wiser about the future.

 

We know that the condition of both children is caused by a genetic mutation. My DiL received a phone call to say that the mutated gene they found from R's cheek swab has now been identified, and she is now waiting for a letter telling her which two parts of the gene are affected. She hopes that will help her to find out a bit more about what neurological damage is likely to be caused and the future progression of the condition.

 

This disorder is rare, and the child has to inherit the same mutated gene from each parent, so our son and DiL must both be unaffected carriers of that gene.. It is possible that the brother of these two may, although unaffected himself, be a carrier. Or not have inherited the mutated gene at all.

 

 

 

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12 hours ago, megustaleer said:

Thank you all for  your concern. 

Really, nothing has changed, just that we know a little more, but not enough yet to make us any the wiser about the future.

 

We know that the condition of both children is caused by a genetic mutation. My DiL received a phone call to say that the mutated gene they found from R's cheek swab has now been identified, and she is now waiting for a letter telling her which two parts of the gene are affected. She hopes that will help her to find out a bit more about what neurological damage is likely to be caused and the future progression of the condition.

 

This disorder is rare, and the child has to inherit the same mutated gene from each parent, so our son and DiL must both be unaffected carriers of that gene.. It is possible that the brother of these two may, although unaffected himself, be a carrier. Or not have inherited the mutated gene at all.

 

 

 

 

We have something similar running throughout our family.  It's from my mother's side, coming from her father, and my mother and siblings were all tested.  Fortunately my mother turned out not to have or carry the gene, there would have been hysterics from her about that because it's passed on.  If she'd have known about it she would not have had children.  She was prone to a bit of hysteria from time to  time.  Those that we suspected had it, those whom we did not suspect didn't and were not carrying the gene but it has been passed down to at least one of my cousins.  He is in no fit state, however, to marry or have children so it might end (for our family, that is) there. 

 

Now that it's known what to look for the brother can be tested to see if he is carrying said gene.

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Momac and meg, I'm sorry for the worry and pain that has just ocurred for you both. I do hope your daughter improves every day, Momac, and her medication stabilises everything again. Meg, there is quite a bit of genetic disability in my family and I know the feeling when you get a diagnosis that confirms what you already know - it comes as no great surprise, but you are still shot through with anxiety and uncertainty as your world shifts. My thoughts are with you and I wish you and your close family all the best.

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Thanks for your kind thoughts brightphoebus, Sheila is now back at work even with her black eye and swollen jaw.  The extra Dilantin has stablized her but we're making sure that she takes as much rest as possible while at home.  Another couple of weeks and I think she should be back to full energy.  She has a doctor's appt. today so he will advise as needed.

 

It is a worry when there is something amiss in the family but I'm sure we all just have to cope with trouble as best we can.  Wishing you and Meg comforting thoughts to deal with family worries.

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